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parent resources

Practical guides, tools and information to help you support your child with IBD.

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Find guides, articles and practical tools for every stage of your child’s IBD journey.

Could my child have IBD? Symptoms, tests and what parents need to know

Worried your child might have Crohn’s disease or ulcerative colitis? Learn about common IBD symptoms in children, when to see a doctor and what tests may be needed.

Setting boundaries with family members about your child's care

Learn how to set healthy boundaries with family members about your child's IBD care, from medication and food choices to unsolicited advice and privacy. Discover practical ways to protect your child and reduce family conflict.

When siblings feel left out because of IBD

Learn why siblings may feel left out when a child has IBD and discover practical ways to support their emotions, strengthen family relationships and help every child feel loved, valued and included.

School anxiety in children with IBD: how parents can help

Learn how IBD can contribute to school anxiety in children and discover practical ways parents can reduce worries about symptoms, toilet access, friendships and missed school, helping children feel more confident and supported.

How IBD affects children's mental health

Explore how IBD can affect children’s mental health, from anxiety and body image to friendships and school, and learn how to recognise emotional struggles and support your child’s wellbeing.

How to prepare your child for a colonoscopy

Learn how to prepare your child for an IBD colonoscopy, including bowel preparation, dietary restrictions, medications, fasting, what to pack and how to ease anxiety before the procedure.

Managing appointments around school and work

Practical tips for balancing your child’s IBD appointments with school and work, including scheduling, workplace flexibility, managing missed schoolwork and preparing for unexpected visits.

Preparing for unexpected hospital visits

Learn how to prepare for unexpected hospital visits when your child has IBD, including warning signs, what to pack, medical information to bring and how to support your child during an emergency.

Managing school mornings when your child has IBD

Practical tips for managing school mornings when your child has IBD, from handling symptoms and anxiety to creating flexible routines and knowing when to keep them home.

Does sugar feed intestinal inflammation?

Explore the research on sugar and IBD, including its potential effects on gut inflammation, the gut microbiome and flare risk, and whether reducing sugar can help children with Crohn’s disease or ulcerative colitis.

Evinature for children with IBD: exploring natural support

Explore Evinature as a natural approach to IBD, including the research, potential benefits, safety considerations and costs parents should know before considering it for their child.

What should I tell my child’s school?

What to share about Crohn’s disease or ulcerative colitis, including toilet access, fatigue, flares, medication, absences, exams, PE and emotional wellbeing.

Helping your child feel comfortable about their body

How Crohn’s disease and ulcerative colitis can affect body confidence, growth, weight, puberty and eating, plus practical ways to support your child’s self-esteem and wellbeing.

IBD, growth and weight: What parents should know

How Crohn’s disease and ulcerative colitis can affect weight, height, puberty and nutrition, what changes to watch for, and when to speak with your child’s IBD team.

Nutrition and growth in children with IBD

How Crohn’s disease and ulcerative colitis can affect weight, height, puberty and nutritional needs, including iron, vitamin D, protein and energy, when to see an IBD dietitian and how to support healthy growth.

A parent’s guide to IBD blood tests and medication monitoring

Learn which blood tests help monitor your child’s IBD, what the results mean, and how regular testing helps keep their condition and medications safe.

Medication side effects: What should parents know?

Learn about common IBD medication side effects in children, including steroids, biologics and other Crohn’s disease and ulcerative colitis treatments, and when to seek medical advice.

Keeping a symptom and flare diary

Learn how to keep an IBD symptom and flare diary for your child, including Crohn’s disease and ulcerative colitis symptoms, bowel changes, pain, fatigue, medications and test results.

When should I call the IBD team?

Not sure when to call your child’s IBD team? Learn which symptoms and changes to watch for, when to seek advice, and when urgent medical care may be needed.

What causes IBD in children?

Learn what researchers know about the causes of Crohn’s disease and ulcerative colitis in children, including genetics, the immune system, gut microbiome and environmental factors.

Crohn’s or ulcerative colitis: What’s the difference?

Learn the key differences, including symptoms, inflammation, diagnosis, treatment, flares and what each type of IBD can mean for your child.

What to ask at your child's gastro appointment | IBD checklist

Use this practical IBD checklist to know what to ask about treatment, medications, tests, flares, nutrition, growth and school.

Newly diagnosed with ulcerative colitis: a parent's guide

A practical guide for parents navigating a new ulcerative colitis diagnosis in their child. Learn about treatment, symptoms, nutrition, growth, school support and emotional wellbeing, plus how to help your family adjust and know what to expect next.

Managing birthday parties and family gatherings during an IBD flare

Practical tips for managing birthday parties and family gatherings when your child has an IBD flare, including toilet access, food, anxiety, fatigue and handling cancelled plans while helping your child feel included and supported.

How a child's IBD affects the whole family

A child’s IBD can affect the whole family, from parents’ mental health and sibling relationships to daily routines and social life. Learn how to support everyone while navigating life with Crohn’s disease or ulcerative colitis.

Can stress make IBD symptoms worse in children?

Understand how stress can affect symptoms in children with IBD, what research says about stress and flares, and how parents can help children manage anxiety while recognising when medical advice is needed.

What is an MR enterography (MRE)?

Learn what an MR enterography (MRE) is, why children with IBD may need this MRI scan, how to prepare, what happens during the procedure and how it helps doctors assess Crohn’s disease.

What blood tests are used to monitor IBD in children?

Understand the blood tests used to monitor IBD in children, including inflammation markers, iron levels, vitamin deficiencies and medication safety, and learn what results can tell you about your child’s health.

Who is who on your child's IBD healthcare team?

Learn who makes up your child’s IBD healthcare team, what each specialist does and who to contact for help with symptoms, medication, nutrition, emotional wellbeing and everyday care.

Preparing for family holidays with IBD

Practical tips for planning a family holiday with IBD, including medication, travel insurance, toilet access, food, managing symptoms and preparing for unexpected flares.

Supporting Your Child on Difficult IBD Days

Practical ways to support your child through difficult IBD days, manage overwhelming emotions, build resilience and help them feel understood, safe and supported.

Curcumin and turmeric for IBD: what does the research show?

Explore the research on turmeric and curcumin for IBD, including potential benefits for ulcerative colitis, evidence for Crohn’s disease, safety considerations and what parents should know before considering supplements.

My child has just been diagnosed with IBD. What happens now?

A practical guide for parents covering Crohn’s disease, ulcerative colitis, treatment, medications, tests, nutrition, school, flares and supporting your child in the early days.

Your child and school: A parent’s guide to IBD

Learn about toilet access, fatigue, absences, flares, missed work, exams, friendships and practical ways to help your child feel supported and confident at school.

Why is my child not growing as expected?

How Crohn’s disease and ulcerative colitis can affect height, weight, nutrition and puberty, what changes to look for, and when to speak with your child’s IBD team.

When your child is scared to eat

How to support children with Crohn’s disease or ulcerative colitis, reduce food anxiety, avoid unnecessary restrictions and know when to seek help from your IBD team or dietitian.

Eating during an IBD flare

Practical tips for managing food, fluids, appetite and nutrition during a Crohn’s disease or ulcerative colitis flare, including foods that may be easier to tolerate, hydration, weight and growth, and when to seek help from your IBD team or dietitian.

Medication questions to ask your IBD team

This practical guide helps parents and carers know what to ask about IBD medications, including doses, side effects, monitoring, vaccines, travel and what to do if treatment isn’t working. Includes a printable checklist to take to your next appointment.

What if my child misses a dose?

What should you do if your child misses an IBD medication dose? Learn what to do with medications, including biologics, steroids and other treatments.

How to help your child through a difficult flare

How to support your child through a difficult IBD flare, including Crohn’s disease and ulcerative colitis symptoms, food, fluids, rest, school and emotional wellbeing.

What does an IBD flare look like?

Learn what an IBD flare can look like in children, including changes in bowel habits, tummy pain, fatigue, appetite, weight and other symptoms to watch for.

Understanding your child’s IBD tests and results

Learn what common blood tests, stool tests, faecal calprotectin, scans, colonoscopies and biopsies can tell you about your child’s Crohn’s disease or ulcerative colitis.

Joint pain and IBD: Why does my child’s body hurt?

Learn about joint pain, swelling and stiffness in children with Crohn’s disease or ulcerative colitis, what to watch for and when to speak with their healthcare team.

What is faecal calprotectin?

Learn what faecal calprotectin is, how the stool test works, what your child’s results mean, and how it helps doctors monitor inflammation in the gut.

Newly diagnosed with Crohn's disease: a parent's guide

A practical guide for parents navigating a new Crohn’s disease diagnosis in their child. Learn about treatment, symptoms, nutrition, growth, school support and emotional wellbeing, plus how to help your family adjust and know what to expect next.

What to say when people give unsolicited advice about IBD

Learn how to respond to unsolicited advice about your child's IBD, from diet and medication suggestions to comments about stress. Discover practical ways to set boundaries, protect your peace and feel confident in your decisions.

Relaxation techniques for children with anxiety

Discover practical relaxation techniques to help children manage anxiety, including gentle breathing, grounding exercises, guided imagery and calming activities, with tips for parents supporting children with IBD.

Anxiety in children with IBD: signs and how parents can help

Learn how to recognise anxiety in children with IBD, understand common triggers such as flares, school and toilet worries, and discover practical ways to support your child’s confidence and emotional wellbeing.

What is a colonoscopy? A parent's guide

Learn what a colonoscopy involves for children with IBD, why it may be needed, how biopsies help doctors assess inflammation, and what parents can expect before, during and after the procedure.

What to do when your child's symptoms worsen between appointments

Learn what to do when your child’s IBD symptoms worsen between appointments, including warning signs, when to contact their healthcare team, how to monitor symptoms and when to seek urgent medical care.

Vitamin D and IBD: what parents should know

Learn why vitamin D is important for children with IBD, how deficiency can affect bone health and growth, which foods contain vitamin D, and when supplements or blood tests may be needed.

Managing work when your child has IBD

Practical advice for balancing work and caring for a child with IBD, including flexible working, leave entitlements, managing appointments and coping with unexpected flares.

The gut microbiome and IBD: what parents need to know

Learn how the gut microbiome is connected to IBD, how diet and probiotics may influence gut health, and what parents need to know about supporting children with Crohn’s disease or ulcerative colitis.

Can dietary changes help induce IBD remission?

Can dietary changes help induce IBD remission? Learn about nutritional therapies, anti-inflammatory diets and how food can support children with Crohn’s disease and ulcerative colitis.

Creating an IBD school support plan

Learn how to create a practical school support plan for your child with IBD, covering toilet access, flares, fatigue, medication, absences, learning, PE, camps and emotional wellbeing.

Growth questions to ask your IBD team

Practical questions to ask about growth, weight, nutrition, puberty, tests and treatment, plus a printable checklist to take with you.

IBD and puberty

How Crohn’s disease and ulcerative colitis can affect growth, puberty, nutrition and periods, what to watch for, and when to speak with your child’s IBD team.

Food and IBD: What parents need to know

What parents need to know about food and nutrition with Crohn’s disease and ulcerative colitis, including food triggers, restrictive diets, special IBD diets, nutritional deficiencies, growth and when to see a paediatric IBD dietitian.

What should my child eat with IBD?

Wondering what your child should eat with IBD? Learn about food and nutrition for children with Crohn’s disease and ulcerative colitis, including eating during flares, supporting growth, avoiding unnecessary restrictions and when to see an IBD dietitian.

Helping kids become responsible for their medication

How to help children with IBD become more independent with their medication, including remembering doses, managing prescriptions, handling missed doses and speaking with their IBD team.

Understanding your child’s IBD medications

Understand your child’s IBD medications, including treatments for Crohn’s disease and ulcerative colitis, steroids, biologics, biosimilars, side effects and monitoring.

When does a flare need urgent medical attention?

Learn when an IBD flare in children needs urgent medical attention, including severe abdominal pain, bloody diarrhoea, dehydration, vomiting, fever and other warning signs.

My child might be having a flare: What should I do?

Think your child with IBD might be having a flare? Learn what symptoms to look for, what to do next, when to contact your child’s IBD team and when urgent medical care may be needed.

Your first gastroenterology appointment: What to expect

Find out what to expect, what to bring, what questions to ask and how to prepare for tests and discussions about possible IBD.

What do all these IBD terms mean?

This simple parent-friendly guide explains common Crohn’s disease, ulcerative colitis, treatment, test and medical terms in plain language.

What is a flare?

Learn what a flare means, why flares can happen, the signs and symptoms to look out for, and how to tell when it’s time to contact your child’s IBD team.

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IBD Kids provides general health information and resources for education and support.  Our content does not replace advise from your child's doctor or healthcare team. Always seek professional medical advice for individual concerns.

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