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I've been recently diagnosed

It's a lot to take in.

Getting a diagnosis of IBD can bring up lots of feelings and questions. It's normal to feel confused, worried or even a bit relieved to finally have an answer. This page will help you understand what happens next and how to start feeling more in control.

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I've been recently diagnosed

What might you be feeling?

There's no right or wrong way to feel.  Many kids and teens feel a mix of emotions when they're diagnosed with IBD.

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Worried
"What does this mean for me?"

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Confused
"I have so many questions."

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Relieved
"At least I know what's going on."

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Sad
"It feels unfair."

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Overwhelmed
"It's a lot to take in."

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Hopeful
"I can still do the things I love."

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What does my diagnosis mean?

Having IBD means you have a condition that affects your digestive system. It’s something you’ll learn to manage with your healthcare team, but you are still you — IBD doesn’t define you.

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Your treatment will be designed to help control inflammation, manage symptoms and help you get back to doing the things you enjoy.

What happens next?

Everyone's journey is different, but here are some of the typical next steps.

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More tests

You might have more tests to find out more about your IBD and how active it is.

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Treatment plan

Your doctor will talk to you about the best treatment for you. This might include medication lifestyle changes or other options

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Your care team

You may have a gastroenterologist, IBD nurse, dietician and other health professionals supporting you.

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Learn and ask questions

It's okay to ask questions and take time to understand. The more you know, the more in control you can feel.

Helpful articles

Explore more and find answers to the questions you might have.

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What is a flare?

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Do I still need to take medication if I feel fine?

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Can I still play sport?

Got a question?

No question is too weird, awkward or embarrassing. See what other kids and teens are asking about IBD.

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Helping kids and families feel informed, supported, and confident living with IBD.

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Living with IBD

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The things schools need to understand

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Important Information
IBD Kids provides general health information and resources for education and support.  Our content does not replace advise from your child's doctor or healthcare team. Always seek professional medical advice for individual concerns.

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In an emergency
If your child is seriously unwell or you think they need urgent medical attention, seek medical care immediately.

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