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Share your story

Your story can make a difference

Every IBD journey is different. By sharing your experience, you could help another child, teen or family feel less alone.

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You can share as much or as little as you feel comfortable with. 

You can remain anonymous, and you can choose what information you would like us to publish.

We’ll only use this to contact you about your submission. It won’t be published.

Who are you?
Parent or carer
Young person with IBD
I am an adult but was diagnosed as a child
Sibling
Other

There is no right or wrong way to tell it. You can write as much or as little as you like. You might like to tell us what happened, how you felt, what you found difficult, what helped, and what you wish other families knew.

Would you like to share a photo with your story?
Yes — I can send one separately
No, thank you

Want to include a photo?

You can email your photo to us after submitting your story. Please only send photos you have permission to share.

How would you like your story to appear on IBD Kids?

Thank you! Your story could make a real difference.

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Your story.
Your choice.

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You are in control

You choose what to share and how it's used.

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You can remain anonymous

Use your first name, a different name or remain anonymous

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We respect your privacy

We never share personal information.

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You can change your mind.

You can request changes or removal of your story at any time.

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Tips for sharing

There's no right or wrong way to tell your story. You might like to think about:

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What happened

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How you felt

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What was challenging

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What helped

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What you wish others knew

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What you'd say to someone going through something similar

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Need help?

If you have any questions or need support with your submission, please contact us.

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Questions about sharing your story?

If you have any questions about the Share Your Story process, you can contact us at stories@ibdkids.com

Thank you for being part of our community.

We are so grateful for your courage in sharing your story.

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Helping kids and families feel informed, supported, and confident living with IBD.

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kids & teens

Questions kids ask

Living with IBD

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Important Information
IBD Kids provides general health information and resources for education and support.  Our content does not replace advise from your child's doctor or healthcare team. Always seek professional medical advice for individual concerns.

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In an emergency
If your child is seriously unwell or you think they need urgent medical attention, seek medical care immediately.

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